This is the Moth Radio Hour, and I'm Katherine Burns.
I've worked at them all for more than 20 years, and one of my favorite parts of my job is all the people I get to meet. The storytellers, of course, but also their friends and family.
There's so many people who had never get to meet in real life, but who I've had the privilege
of getting to know a little bit when their loved one tells a story about them. This is especially true when a storyteller is talking about someone who has died. Through our stories, we're able to keep the people we love alive long after they leave us.
βI think of comedian Mike Destifano's wife, Franny.β
Two weeks later, they sent her out of the hospice because she started to get better. She was a thrown out of hospice for not dying, and only she could pull out off. She was a young Italian girl, and she was not interested in suffering and dying, but who is, but she was extra not fucking into it. Or Kate Teller's memory of her late mother Lisa.
We're laughing about this, and she throws her head back like she does. I note the shape of her nose, and that her head is so small. She buys her glasses in the children's section at lens crafters, and I can see this because
βin the candlelight, I can see the side, the arm of the glasses, where it says Harry Potter.β
To tell a story about someone who has died is to conjure them back to life, if only for a few minutes, and allow hundreds and thousands of people to meet them. This week's theme was actually inspired by Sharon Diorci, who's story about her mother Adrienne,
is the first step in this hour.
I loved Adrienne, and hope you will too. Sharon told this at the Houston StorySlam, for we partner with Houston Public Media. Here's Sharon Diorci, live at the mall. Shortly after my dad died, my mom moved in to with me.
βHere we were two single ladies, one widowed, one divorced, separated by 23 years, but joinedβ
by 23 chromosomes, and at least 23,000 memories. And that was the start of the adventures for my mother and I. My mother was smart, she was kind, resourceful, and feisty. She also was petite about the size of a chickadee. And she quickly determined that her favorite adventure was going to an expensive restaurant
for dinner, and she would order two lemon-dried martinis, a crab cake for an appetizer, an entree and cream-bru-lay. I was still working at the time, but sometimes I wanted to have some fun. So I would say to mom, pick out your clothes mom, we're going on an adventure. She liked it, we had fun, and she neither planned nor paid.
But every outing that we had had a situation that made my list of things not to do. For example, I took her to an authentic 1880's Thanksgiving dinner in Plymouth, Massachusetts. My mother is the one who asked if her apple cider could be traded for a lemon-dried martini.
Then there was the first time that we went dog sledding along the Canadian border.
Outside of the path, the snow was really deep, it was up over my knees, higher on my mom's body. And when we took a break to rest the dogs and relieve ourselves, my mother and all of her snow closed, you know, kind of waddled into the woods to pee. However, she did not like to follow directions, so she failed to hold onto a tree branch.
As a result, she fell backwards, her feet hopelessly tangled in her snowpams,...
her ass.
βShe had the humiliation of having to call our guide Pierre to get her upright.β
Then there was the time I took her to the vagina monologues. She loved them, but about midway through, she kept going like this to the lady next to her, like, did you get that, you know, and I'm thinking, this is a problem. Well, before long, she whispered in a very loud voice to this stranger, "I know all the nicknames for vagina.
If you need any help, just ask me. My husband was a sailor. My last example was I took her to Reykavak for a spa vacation for her February birthday.
βWhy is not following direction she never paid attention to her surroundings?β
So she went out the door of the spa and found herself in the hotel lobby, locked out of the spa, wrapped only in a towel, where everyone else in the lobby was marrying a parka. She did not speak Icelandic.
Well, dementia finally ended my mom and I's adventures.
I was her caregiver for the last six years of her life. And as she was dying, I was sitting next to her.
βI held her hand and the hospice nurse said, she's ready to go, tell her that she has yourβ
permission. And I said, "Mom, you can go now, you can go to heaven, but nothing happened. I tried another approach," I said, "Mom, do you know what St. Peter has waiting for you, lemon drop martinis, crab packs, and cream bruleque?" And she died.
And the hospice nurse said, "By God, I've never seen that."
And I said, "I couldn't go with her on this adventure, but I sure hope that St. Peter remembered to go to specs and croakers are I'm going to catch hell." That was Sharon Diorsey. Sharon moved to Texas for her first job after graduate school and has stayed for 50 years. She was a corporate engineer, an entrepreneur, an educator, a caregiver and a writer.
Curiously, Sharon and her friends gather to drink lemon drop martinis and tell Adrian stories. To see stunning photos of Sharon and Adrian go to the moth.org. Coming up, a student chaplain that in nursing home gets schooled by her charges. That's when the moth radio hour continues. And with the checkout with the world for the best conversion, the checkout with the world for the best conversion.
The first time I've ever seen a student, I've never seen a student.
I've never seen a student, but I've never seen a student.
This is the moth radio hour I'm Katherine Burns.
In this hour, we're talking about remembering those who have left this world by telling our favorite stories about them.
βHere is Adrian Watson, live at the handover theater in Worcester, Massachusetts.β
It was a magical night. I don't know what's shown brighter, the stars in the sky, of those in the field at the conclusion of the Olympic games. I was running all over the field in Atlanta, Georgia, congratulating all the athletes,
marvelling at their medals, giving them hugs that transcended language barriers.
My friends thought that I lived such a glamorous life as a sports attorney and yet what they didn't know was that I was miserable.
βI was that little kid, the one that wanted to make a difference in the world.β
You know, find a cure for cancer, bring about world peace, and this wasn't it, but I didn't know what would be it. And so that night, and for two more years, I struggled, and I tried to figure out what it would be. Now, I wasn't raised in a religious household, but I remembered clearly how a local church reached out to my family when my father passed away to give us comfort in our time of grief. And I also remembered that, particularly with the black church, it was a public square with political and economic engagement happened, and I wanted to be a part of that.
So I decided to leave my very successful career in the law and go to seminary to go into ministry, and I happened to pick a seminary that was very social justice oriented and believed in experiential learning. So I found myself as a student chaplain and assisted living center in Atlanta, Georgia. Now, this assisted living center was average age 80, overwhelmingly white, overwhelmingly female, and 100% good southerners. So I showed up my first day with my box, the senior chaplain meets me, shows me to my office, and she says, "Put your things down, get a little comfortable, but meet us down in the main meeting room for your first half meeting in five minutes."
She walks out the door and in walks, Joni. Joni has a bouffat hairdo, a string of pearls, little platform heels, and she says, "Hi, I'm Joni. A long time resident here at the assisted living center, I play the piano every week at Bible study. Now, you're going to start Bible study reading the 23rd Psalm, and you're going to end it with a hymn called a loan in the garden. "Hi, Joni. How are you? Nice to meet you. Listen, Joni. I have a meeting I need to go to, so why don't you and I talk a little while after the meeting?"
Joni sits down and proceeds to tell me about everyone who lives in the living center in the assisted living center, what all their problems are and how I should pray for them. Thanks, Joni. That's wonderful, but I really have to get to this meeting that I'm now 15 minutes late for. She says, "Don't worry dear, you're going to make a fine chaplain." Oh, she goes. I run out to make it to the meeting and I see a guy sitting in the corner, scowling out the window.
And he strikes me as a rather odd. In the 20 minutes that I've been at the assisted living center, he's the first person I've seen with a full head of hair. And it's not great!
Something's going on here. So I go to my meeting and I'm told what my duties are. I'm to go to the hospital to make hospital visits, visit some of the seniors who can't leave their homes, just be available for them. Just before I leave they say, "Now listen. You may have noticed the guy sitting out there near the window looking really mean. His name is Jimmy. He's really mean. He's not happy. He hates it here. His kids drop him off. They don't come visit him. He's from Brooklyn. Don't take it personally."
I go straight to Jimmy. I said, "So, Jimmy, they tell me that you think the best pizza in the world is from Brooklyn. And everybody knows the best pizza in the world is from Manhattan with Queens playing a close second." He looks up at me, "Who are you?" I said, "Hi, I'm Adrian. I'm the student chaplain. Is there anything I can do for you?"
βBooze and broods. Booze and broods. Can you do that?β
No, Jimmy, I can't do that. But I'm the student chaplain. Is there anything else I can do for you? Gambling. Gambling. Can you do that? You know what, Jimmy? That. I can do. I ran into the office. I pull out the deck of cards that I keep with me because you never know when you have to play a game of solitaire.
I come back and I say, "Jimmy, I don't know how to play poker.
So we play a couple of hands of poker. I lose him miserably. And he throws the cards down. He says, "This is gambling. There's no money."
βGive me a couple of days, Jimmy. I'll figure it out. I come back a couple of days later with a jar full of pennies. Sit down with my jar full of pennies. We get to playing. I start beating Jimmy ridiculously.β
And Jimmy says, "Hey, hey, hey, hey, hey, I know when I've been hustled. I've been hustled here." And this is by the way not gambling. These are pennies. I say, "Jimmy, pennies are money. Money is gambling. We're gambling. Let's play." And he says, " aren't you a minister?" I say, "Yeah, I need to go. Won't you get in trouble for gambling?" Yeah, probably, but let's have some fun until that happens, shall we? He's like, "Okay." And Jimmy begins to tell me his story. And we play poker for pennies two times a week for several weeks. And he tells me that he's from Brooklyn, that he was adjacent to, but not in the mafia.
That his children convinced him to come down to Atlanta, but then moved him into the assistant living center and never come to see him.
Jimmy was right about one thing. I got in trouble. I was called into the office and they said, "You are the minister. You don't get to gamble. You don't get to gamble publicly."
βAnd I said, "Wait a minute. Jimmy's doing well. You said the guy didn't talk. You said he was mean. Look at him. He's laughing. He's having a ball." And they're like, "Yeah, yeah, yeah. That's all well and good."β
But you don't get to gamble. You're a minister. Okay, great. So I said, "Let's think about this. Tell you what we do. How about at the end of every game? I scoop up the pennies, put them in the jar, put the jar back in my office."
And then technically, there's no gambling happening. They agreed to that. I said, "I got to use my lawyer in skills."
This is good. So among other responsibilities I had was visiting the sick in the hospital. You know, you go, you get a list of the residents who are in the hospital. You go and see them tell them we were thinking about them and you pray with them. And one day I'm at the end of my rounds and I get on the elevator and there's a woman crying hysterically. And I said, "Hi, how are you?" And she said, "Oh, I'm terrible." I said, "Okay, you got off the elevator." And something said, "Get back on the elevator. You're the chaplain. Help this woman."
βSo I back up. I get back on the elevator. I said, "Man, is anything I can do to help you?" And she said, "Yes. My boyfriend was in a really bad motorcycle accident."β
And they won't let me see him because he's an ICU. So could you go see him and pray for him? So I said, "Sure. I can do that. I can handle that. No problem." So I'm like, "Muh, up to the as I go to ICU. I go see the ICU nurse. I show her my badge, student chaplain." And I said, "Hi, I'm here to pray for the gentleman who was in the motorcycle accident." And she says, "Oh, roommate. I go to roommate and there's a group of doctors and nurses and technicians surrounding a bed." And as I walk in, one of the nurses moves one way, one of the doctors moves another way. And I see the person in the bed.
There's no skin on his face. Half of his eye is hanging out of the socket. His teeth are a mangled mess. I leap back and scream, "Oh, my God, what happened to you?" The room freezes. The doctor turns around. He says, "Get out. Get out now." That's a hey. I'm the student chaplain. Get out. Go stand over there. And I'm shaken by this and I go and I stand in I hang my head and they do whatever they do and the doctor comes out. He says, "Let me tell you something." You're supposed to be a professional. That man is on the brink of death. He does not need you to come in here and have the kind of reaction.
Now, get yourself together. Get yourself together. Go in there. Do what you're supposed to do. Be a professional and then leave. So I walk in and there's only one nurse left in the room by this time. And I said to her, "Is there any part of his body I can touch that won't cause him pain?" She points to one hand. So I grab his hand and I says, "Sir, your girlfriend asked me to come and pray for you." And his eyes well up with water. She wanted me to tell you that she loves you. And she's not going to leave this hospital without you. I may I pray for you.
And I pray for him. And when I'm done, he's crying. And I walk out and I'm thinking, "I don't know if it was my lack of professionalism being called out. For my lack of professionalism, the tears that he had because I didn't know if I was causing him pain by touching him. But I felt like maybe I'm not really good at this. And I felt really, really awful. I got in the car and I was like, "Wow, you know, maybe I don't know. I know what I'll do.
I know what I'll do.
That's what I'll do because a Bible study was deadly dull. And I said, "I can get this right. I know I can get this right."
βSo I show up at Bible study with new scriptures and new hymns because we're going to live in this thing up.β
And we're going to have a good time. So I walk in. I pass out all the new hymns. I say to Joni, "Hey, Joni, hear some new music. We're going to play." And Joni looks at me and I say, "Okay, here we go." And I start to sing, "One joins me." And I'm singing. And I hear this rustling noise and I look at all the ladies because only ladies went to Bible study. They're getting up and they're grabbing their walkers and they're grabbing their canes. And they're walking out albeit very, very slowly.
I am in the middle of a full-fledged Bible study revolt.
I look over at Joni, Joni shakes her head and walks out. And the only person left was the lady who slept in the front row every week during Bible study.
βI go back to my office and Joni's sitting there and Joni says, "Dear, let me explain something to you."β
We read the 23rd Psalm every week because Mrs. Somnso read it to her husband every night before he died. And so it has a lot of meaning to us. We sing alone in the garden every week because many of us have visual and memory issues. And we can't learn new songs. I suggest that before you try and get people where you want them to be, you understand where they are,
and meet them there. And then she passed me on the back of my hand and she says, "Don't worry, you're going to make a fine chaplain someday." And such was my life at the assisted living center from one crisis to another,
βsetting off the sprinkler system when I tried to sneak a meal in the community kitchen because I didn't want to eat jello delight.β
Or the time that I allowed the blind ladies emotional support cats escape during a visit.
Always followed by a reprimand in the front office which they called lovingly coaching and mentoring.
Followed by Joni's visit where she would explain to me what I did wrong and how I could do better. Always leaving by padding my hand and saying, "But don't worry dear, someday you're going to be a fine chaplain." I realized that I was not cut out for this. I made a mistake and I just needed to get to the end of this experiential learning experience and get my life back together. So I'm wrapping up my responsibilities my last week of hospital visits. I go to the hospital and I see a man in a wheelchair being pushed to a car.
And I said, "Hmm, he looks remotely familiar. Not sure where I know him and then I see the woman pushing him and she looks at me. She recognizes me. I instantly recognize her. It's the lady from the elevator. That's the guy from the motorcycle accident. Oh my goodness, he made it. He's alive. I did something right. I did something right. He survived the motorcycle accident. Wait till I tell Joni, wait till I tell Joni, I did something right. So I go through my hospital visits. I can't wait. I get in the car.
Wait till I tell Joni, I did something right. I get to the, to my office as a note to come immediately to the front office. And I thought, "What? Some other disaster happened and I'm about to have my nice mentoring and coaching session." So let me just get ready for that, but I'm going to tell them the man lived. And I walk in and they tell me to have a seat and I have a seat and they said, "Aid, we just need to let you know that Joni died last night." She had a sudden heart attack on her sleep and Joni died.
Her family is going to hold a funeral here and we would like for you to read the 23rd Psalm. You can do that, right? I said, "Yep, I can do that. I can do that for Joni." So we come to the funeral. I stand up to read the 23rd Psalm. I see Jimmy walk in and a suit and tie. I didn't even know Jimmy owned a suit and tie. There he was. Coming to Joni's funeral. And I opened the Bible and I say, "The Lord is my shepherd." And I drop my head and tears well up and I begin to cry and cries turn into sobs and sobs turn into wailing.
And I'm standing there in front of everyone wailing and heaving and crying and crying. And suddenly I see coming towards me Joni's son and Joni's son comes and he puts his arms around me and he's comforting me. It's going to be okay. It's going to be okay and I'm thinking, "I can't even get this right." I'm supposed to comfort the family and I'm a mess. And I see out of the corner of my eyes the senior chaplain just shake her head and hang it low.
I was like, "This is a disaster.
So we get through the funeral a few days later. I'm there to pack up my belongings because I only have a couple of weeks left. So I'd say, "Well, I might as well get a start on that."
βAnd I get a note that I need to be seen in the office and I think, "Well, they can't even wait the couple of weeks to the end of this thing. They're going to let me go today."β
They're going to say, "You're not cut out for this. It was a nice experiment, but hey, we learned something. You are not supposed to be a minister. Good luck." So I go in and they say, "Please have a seat and I'm preparing myself for this." I said, "We want to read you a letter that Joni Sun just sent us and I thought, "Oh, this is going to be a bad one."
And he said, "My family and I have always felt extreme guilt over moving our mother into an assisted living center."
And we sat with that guilt for years. But when that lady chapped and broke down while reading on Mother's favorite prayer, we realized that she was truly loved. And this was her home and that she was cared for. And all of that guilt just lifted off of our shoulders. So as a thank you, we like to give you and it turned out to be the largest gift by a private individual to this particular assisted living center. The senior chaplain gets up, she walks past me, she puts her hand on my shoulder, and she says, "You've become a fine chaplain."
Thank you. [Applause]
Dr. Adrian Arlatzin calls herself, "Arenna Sun's woman with a Peter Pan streak." She's a cultural anthropologist, administrative law judge, author, public speaker, minister, and performance artist.
But she says her true passion is traveling the world sharing and hearing stories. For the Moth's 25th anniversary, five of our longtime story directors spent 18 months putting all our knowledge about storytelling into a book.
βIt's called How to Tell a Story, the essential guide to memorable storytelling from the Moth.β
And it's full of tips on how to tell your own stories, whether that's on stage at the Moth or in a job interview or while giving a toast. But we've heard a lot about this topic of honoring our loved ones by telling stories about them. Telling stories is a way to make sure precious memories of beloved family members get passed on to future generations and cement them at our collective memories. Here is the Moth's senior curatorial producer Suzanne Rust on how she honors her parents. This is excerpted from the audiobook version of How to Tell a Story.
I am forever weaving stories about my parents into conversations and my children who never got the chance to meet my wonderful mother often toss her stories back to me.
And through them, they have a pretty good idea about her. Talking about my parents is like sprinkling a little handful of fairy dust that brings them back to life for a few moments. I'm a big believer in celebrating my parents' birthdays every year. I make their favorite meal and pour them a drink, vodka and tonic for her, Roman coke for him. But really, it's just another excuse to talk about them and have a good laugh or cry and repeat our favorite stories about them. That was my fellow radio host, Suzanne Rust.
A final tip. If you're trying to capture stories of a loved one, especially someone who is elderly and perhaps suffering from memory loss, try recording them while they go through family photos. The pictures can trigger memories that my otherwise be lost.
βThat's what the Moth's executive producer Sarah Austin Janesse did.β
Again, take him from our audiobook. My grandpa Jack was in the throes of dementia when I recorded him talking about his life. He had no short-term memory left, but with the help of photographs, my grandmother and I were shocked and delighted to know that his long-term memory was still intact. With each black and white photo we revealed to him he was transported. He told us of his lake vacations in the summer as an only child and his doding parents.
He said my father was an insurance salesman. He cared so much about his few clients. He kept visiting and asking if they were all right and if they needed more insurance. They didn't need more insurance. He needed more clients. The photographs lit up not only detailed memories from the past, but also his dry sense of humor that we worried had vanished.
That was Sarah Austin Janesse. Coming up, the writer Elizabeth Gilbert tries in vain to manage the illness of her headstrong wife. That's when the Moth radio hour continues.
The Moth radio hour is produced by Atlantic public media and Woods Hole Massa...
This is Sarah Glass at the American Life. Do you know our show?
βOkay, we'll be the way I'm going to tell you about it.β
We make stories. Old fashion stories that hopefully pull you into the beginning with funny moments and feelings and people in surprising situations and then you just want to find out what is going to happen and cannot stop listening. That's right. I'm talking about stories to make you miss appointments and ignore your loved ones.
This American Life every week, wherever you get your podcasts. This is the Moth radio hour. I'm Katherine Burns. In this hour, we've been talking about how people live on through the stories we tell about them. Peter Aguero once hosted a show in New Bedford, Massachusetts. And after a teller shared a story about losing a loved one,
Peter reminded the audience how the simple act of hearing that story brought their memory to life.
βAnd it's a really beautiful thing. I get to, I'm very lucky.β
I get to hear lots of stories and you know they say that when we die, we really die twice. He die once when your body's gone. And then you die again when your name is said for the last time. So when we tell stories about the people that we lost, they stay alive. So I'm pleuring you to please tell the stories about the people that you love that are gone.
So they'll never be gone. You know, you just say their name again.
They're still alive. On the count of three, everybody say the name of someone that they love that isn't with us anymore. Just on the count of three, everybody all together, one, two, three. And they're still alive. They're still over here with us. Thank you so much.
Yeah. Yeah. They're all there's there.
βThat was Peter Aquarro at a Moth and you Bedford.β
A few years back, I got to know someone truly remarkable. When her partner Elizabeth Gilbert took the Moth stage at St. Anne's Church in Brooklyn Heights. Here's Elizabeth Live at the Moth. Last summer, I was walking down the street in New York City in the East Village. And it was a glorious day. And the sun was bright.
And I had the love of my life on my arm. And she was dying. Really dying. She had advanced pancreatic and liver cancer. And the tumors had grown and they had spread. And she had recently discontinued all chemo and medical treatment because it was hopeless. All she wanted at this point in her life was to try to find small ways to enjoy whatever was remaining to her.
And what that meant on this day was that she wanted to try to mobilize to get herself out of the house and walk to Tampken Square Park and get a self-serve ice cream cone. Now, Tampken Square Park was four blocks from where we lived, but it truly might as well have been Kilimanjaro for the amount of effort that it took her to do it on this day. And she was on her cane and she's leaning her full weight against me.
What's left of her full weight because she's gotten so thin. And I've got my arm around her and I can feel her little bones through her sweater. And my heart is breaking because this day signifies a turning point in her illness that I had known was coming. And I had dreaded was coming and now it is here. And it is the day where she has now gotten so frail and so weak that we can officially say that this once for middle person is now completely dependent on me.
And the reason that so particularly heartbreaking would be heartbreaking for anybody, but the reason it was so painful in this case is what you've got to know about my girl is that for the 17 years that I knew Reya Elias,
I never once saw that woman walk into a room that she was not the most powerful person in that space.
Never once, didn't matter what. She was so tough, so strong, so hot. She was a Syrian-born Detroit-raised glamour-buch lesbian punk rock, ex-heroin addict, ex-fellen, rock and roll, music star artist, filmmaker, hairdresser, writer, phenomenon of a human being. And in the circles that we rolled in, Reya was legend, not just because she was so tough and so streetsmart, but also because she had this enormous, capacious, generous heart.
And she was ferociously protective of anybody who she cared about. And if you were lucky enough to be one of the people who Reya loved, she would just tuck you under her arm and name you as one of her little cubbies. Like we were all the little wolf cubs and she was the mama wolf. And she would just take you through the world and you were never in danger when Reya was there.
I have never experienced a feeling like it, and that's exactly why I fell in love with her and why I blew up my entire life.
To be with her was precisely and expressly because of that power.
But now she's powerless, and as we're inching along the sidewalk on Avenue A, I'm feeling that for the first time.
βAnd I'm feeling how the tables have turned because now I've got her tucked under my arm.β
And now it's my job to protect her from a world that she used to dominate effortlessly. And I don't know if you've ever taken care of somebody who's sick and dying, but when somebody who you love is very fragile, one of the things that happens is the entire world starts to feel incredibly perilous.
You know, every crack on the sidewalk is something that could trip her and she could hurt herself, every kid on a skateboard, every big dog,
could knock her over, so it's my job to keep her safe and I've got her bundled up and I'm navigating her down this world.
βAnd it's so terrible to watch her decline, but the one consoling thought that I'm having in that moment is,β
"Thank God she has me, like thank God or what would we do, like who would protect her if I wasn't here?" And at that moment, the super sketchy guy on a bicycle comes tear-assing up the sidewalks, super fast. He's like this gross, meth head looking crusty bearded, nasty guy and he's got a furious face and he's tearing so fast up the sidewalk, her reading into pedestrians and he's coming right out of us and he almost plows us over and I managed just at the last minute to grab Raia and pull her out of the way for safety, but he clips her.
He hits her on the arm with his bike handlebar as he goes by, and I'm like, "Oh my God, my baby, at which point Raia turns on her heels and says, "Get the fuck off the fucking sidewalk, mother fucker." And the guy, the guy screeches to a halt, drops his bike, grabs his crotch and goes, "Something my dick bitch." And Raia goes, "If you had a dick, you'd be driving a car and I'd be like a fucking loser." And I'm like, "Whoa, kids, I'm from Connecticut. I need everybody to just take it down." But I'm also looking at her and I'm thinking, "What are you literally backing this up with?"
βLike she weighs 87 and a half pounds at this point and I'm thinking, "What are you going to do, Raia?β
If this guy comes at you and then I see it, he's not going to come at her." Because she's locked eyes with him and she has communicated to him very clearly that she is the alpha and he is the mutt. And everybody can see it him most of all. He drops his eyes, grabs his bike, scuttles off. And Raia keeps on inching down the sidewalk with her cane, gets her soft serve, finds herself a nice little sunny spot in the park, smiles up at me and says, "Today's a good day, babe."
So yeah, this story that I had in my head, when Raia got sick, about how helpless and dependent she was going to become, that never actually happened.
Because somehow despite the advances of the disease, Raia managed to remain the apex predator in every situation that she came into. And every plan that I had made, because you know I made plans to take care of her, every plan I made based on my perceived idea of her helplessness, that all blew up to. And my whole planning had been based in this idea that I was powerless to stop her from dying, but by God I was going to make sure that she had the gentlest, the safest, the most enlightened, the most cushioned death that a human being could possibly have.
But she didn't want any of that that I was providing as it turned out because Raia didn't want gentle. That's not how she rolled. So she didn't want to talk to the bereavement counselor that I brought to our house. She wanted to watch football afternoon with her nephews. And I made her all this beautiful organic food to keep her as healthy as we could keep her and she didn't want it. She wanted to live on Oreos and cigarettes and did live almost exclusively on Oreos and cigarettes for a solid year past her original expiration date as she called it.
And of course I got her signed up with hospice because I wanted to make sure that she had the best and safest quality home care. And then Raia got kicked out of hospice because she wouldn't let the nurses in when they came to check on her. So they'd come for their weekly check-ins and she didn't send them away. She didn't want to deal with them, didn't want to look at their faces, didn't want to deal. But that's what happened. And I went through all this trouble to rent and create this beautiful apartment for her to spend her last months and with everything that could imagine that she could possibly need a dormant building and an elevator and wide hallways for the inevitable wheelchair that would be coming in an extra room for a caregiver if we needed a night nurse toward the end.
Everything that you could possibly imagine is beautiful soft sunny space and ...
She wanted to go back home to be with her family and to like party with her friends from 30 years ago so she moved.
My fragile terminal cancer patient moved to another city and what did I do? I did what I'd always done with Raia. I followed a scammer after her like the little cub that I'd always been and blew up my life once again just to try to keep up with the she wolf.
βSo even Raia, not even Raia, tough as she is of course, was tough enough to withstand pancreatic cancer and the disease continued to eat it her and by November of last year the doctor said it's any time now.β
She's on borrowed time already but it could be at any moment and knowing that she was so close to the end. She called in her ex wife Gigi who she'd been married to 10 years earlier and asked her to come and help take care of her and she had also already called in her ex girlfriend Stacy from 20 years ago and she had me. So now what Raia's got is a hot blonde from every decade of her life waiting on her hand and foot with devotional love which is Raia Elias's version of course of hospice and that totally worked for her the Charlie's Angels way of being taking care of.
I did it we did it because we were crazy about her because she was that mach daddy and she still was.
She managed to live till Christmas I don't know how but she pulled it off it was important to her and on Christmas Eve and Christmas day she couldn't get off the couch and she was in and out of awareness but she knew that we were there and she knew that we were loving on her and she was happy.
βMidnight on Christmas night we put her to sleep and at four o'clock in the morning I had to wake her up to give her her pain medication and I couldn't rouse her.β
And this was the first time that it ever happened so I just laid with her for an hour and waited for another hour and I tried again I couldn't get any response from her another hour and no response and by the time that the light of dawn was breaking through the snow storm outside.
I could hear that her breathing was ragged and her lips and her hands were turning blue and I knew that's it.
So I went and I got Stacey and Gigi and I said it's now you know come and what happened next was so exquisite it was so beautiful it was like the three of us these three women who had loved her so passionately for her whole life we just knew what to do like it had been scripted or that we were born to it. We just came into the bedroom and and Gigi put on sacred music and Stacey little candle and then the three of us as one got on the bed and we wrapped our bodies around her body. And we took turns telling her all the last things that she needed to know if she could still hear us that we loved her that she was incredible what a grand and stellar life that she had lived that we would never be the same for having loved her and been loved by her.
βThat she had forged our hearts in the furnace of her power that we would always love her that we would never stop telling the world her name.β
And then it was like this silence descended and it was like this portal opened from some distant uncharted part of the universe and this river of the infinite entered into that space and we could feel it that it was taking her very gently from us. And that's when we opened her eyes and said what the fuck are you guys doing. [laughter] And we're like nothing. Nothing.
She's like what's going on? I'm like definitely not a bet that's her death watch like no that's not like wiping sheets of tears from our eyes. She goes, babe why are Stacy and G.D. and her bed I'm like they're not they're just dropping off some mail you know like kicking them out of bed G.D. is running to turn off the music. Whereas like why is this like a fucking candle in here? Stay like it does and we're just not it's my shampoo. I raised like you guys are weird. She sits up in bed lights a cigarette looks at me and goes babe what's today's date. I said it's December 26th my love. She said cool.
I want to hit that 60% off sale today at little lemon. [laughter] So we did the flowers later we're all at little lemon there's red in the dressing room surrounded by her tendons trying on a leisure wearer for some future that she's still very much intending to have.
Somebody once told me and I wish to God that I had got it sooner that there i...
They're living people and they're dead people and as long as somebody is alive as long as they have any sentience or sense about them you have to expect and allow them to be who they have always been.
Never more important than at the end of somebody's life that they get to be who they are and who they always were.
βAnd I think that goes a long way toward explaining why Raya was so resistant why she was so stubbornly oppositional to every story that I had in my mind about what her death might be or should be.β
She wasn't having it from the beginning of a diagnosis till the end of her life she was like I'm not your story or like you don't get to script this. I'm Raya fucking Elias my life my death I'm doing it my way you don't write this one I'm doing this one.
So it was just a handful of days after Christmas when she did die and hers was not a gentle death I'm sure he will be shocked to hear.
She went down fighting and it was rough and even there at the end I still had stories in my head about what I wanted it to be and how I wanted it to go and I had this very airy dreamy romantic idea about Raya's last words would be to me that she would. She would gaze up at me from a soft pillow and say I love you or thank you for everything you did for me. You're getting the idea. Raya Elias says last words to me were no baby no as I was trying to walk her from the bathroom to what would be her death bed no baby no it was the last steps that she was ever going to take in her remarkable life no baby no her legs didn't even work anymore no baby no.
I got this and what I got but I only got it at the very end was that Raya didn't want my help she didn't want my pity she didn't want my planning she certainly didn't want my story.
βThe only thing that Raya wanted for me was that thing which I had always so effortlessly and naturally given her which was my devotion and my awe.β
She just wanted me there in the room in love with her and bearing witness as she took that last ride. She just wanted me standing back in amazement and horror but mostly amazement watching as she went down as she came out of this earth not gently but like a ship going down in a storm at sea like the force of nature that she was. And in the end the only thing that I could do for her and those last harrowing hours was nothing. It was nothing except to surrender to my powerlessness and to have to let her go and to have to watch her go and she went down swinging and battling to the last awful breath.
It was brutal and it was beautiful and she was brave and I held like a wolf when she was gone and I will never stop telling the world her name.
βThe bestselling author of nine books of fiction and nonfiction, including E.Pray Love and City of Girls.β
Elizabeth was raised on a small family Christmas tree farm in Connecticut but she currently lives in New York City. And for those of you who aren't familiar with her, Raya Elias was a Syrian-born writer, musician, hairdresser and filmmaker. She was just 57 when she died and her own book, Harley-Loko, a memoir of hard-living, hair and post-punk, was published in 2013. On the one-year anniversary of Raya's death, Elizabeth sent me a link to a new young song. She wrote, "Raya asked me to ask you to play the song for her so-so loud today."
"We hope you'll be inspired by this hour to tell a story of your own. Baby about someone you love who's no longer with you." That's it for this episode. We hope you'll join us next time. We hope you'll be inspired by this hour to tell a story of your own.
Baby about someone you love who's no longer with you. That's it for this episode. We hope you'll join us next time for the Moth Radio Hour.
The episode of the Moth Radio Hour was produced by me, Jay Allison and Kather...
Co-producer, Vicky Merrick, associate producer Emily Couch.
βThe rest of the Moth's leadership team includes Sarah Haberman, Sarah Austin, Janiss, Jennifer Hickson, Meg Bowles, Kate Tellers, Jennifer Birmingham, Marina Couchay, Suzanne Rust, Brandon Grant,β
In Good Bloodowski, Sarah Jane Johnson, and Aldi Cossam. Audio courtesy of Random House Audio from How to Tell a Story by the Moth.
Special thanks to Devon Sandford and his series on reeling stories of Brooklyn-based organization providing a platform for people of color, women, and others who have been pushed to the margins of our culture.
βMost stories are true, as remembered in a firm by the storytellers.β
Our theme music is by the drift other music in this hour from blue dot sessions, the swing growers, and Neil Young.
We receive funding from the National Endowment for the Arts.
βThe Moth Radio Hour is produced by Atlantic Public Media and Woods Hole, Massachusetts.β
Special thanks to our friends at Odyssey, including Executive Producer Leah Restennis. For more about our podcast for information on pitching us your own story and everything else good or our website, TheMoth.org.

